In the News (continued)
The Liverpool Review: Rare Disease Day 2011
Liverpool Review: Day Set Aside To Acknowledge Rare Diseases Day Set Aside To Acknowledge Rare Diseases February 24, 2011 By Katie Schwendeman (Editor’s Note:This story can also be found at the Liverpool Review.) EAST LIVERPOOL - Last spring, East Liverpool resident Lisa Utt sat in her car in the parking lot of a local doctor’s office crying so hard she couldn’t drive home. A visit to...Read More »
Two Registry Studies Are Published
Two IH Registry Studies Published in Obesity Review & Journal of Women's Health: Total Economic Costs of IIH in US Exceeded $444 Million in 2007 October 27, 2010—Two IH Registry studies, examining different aspects of IH, have recently been published in two major medical journals, Obesity Review and the Journal of Women’s Health. This marks the first time that research studies have...Read More »
IH Registry Provides Research Resource Data to eagle-i Consortium
IH Registry Provides Research Resource Data to NIH-Funded Database Built By OHSU, Harvard, 7 other institutions Innovative eagle-i Consortium’s purpose is to make researchers aware of valuable biomedical resources and accelerate research April 30, 2010—The majority of existing research resources cannot be found easily, using university websites, the scientific literature, or Internet search engines. The IH Registry was established with the goal of...Read More »
The Columbian: Vancouver Family Combats Rare Hypertension Condition
The Columbian: Vancouver Family Combats Rare Hypertension Condition Patients With Little-Understood Agonies Find Community January 10, 2010 By Scott Hewitt Columbian Staff Writer (Editor’s note: This story originally appeared at http://www.columbian.com/news/2010/jan/10/vancouver-family-combats-rare-hypertension/ ) Portland, OR — Jessica Tanne’s headaches were beyond horrible. The Vancouver native was at college in New York City when she became debilitated by brain pain that knocked her life out from under...Read More »
Pregnancy and Diamox Use Study Update
Pregnancy and Diamox Use Study Update: Additional Participants Are Needed! The IH Registry is looking for additional women with chronic IH who have been pregnant at or since the time of their IH diagnosis to participate in the pregnancy and Diamox use study. If you meet this criteria, please continue reading and answer at the end! About the Study: Diamox (acetazolamide) is officially...Read More »
Oregon Lions Award IHRF Co-Founder Highest Honor
Lions Eye Bank of Oregon Award IHRF Co-Founder Highest Honor Emanuel Tanne, M.D. Named 2009 Bev Thoman Awardee October 2, 2009—The Lions Eye Bank of Oregon has presented the Bev Thoman Award to Dr. Emanuel Tanne, IHRF’s co-founder. The Bev Thoman Award is given annually to an individual recognized for his or her outstanding devotion to the mission and development of the...Read More »
IHRF Establishes Neuro-Imaging Library at OHSU
IHRF Establishes Neuro-Imaging Library at Oregon Health & Science University (OHSU) The Intracranial Hypertension Research Foundation (IHRF) is excited to announce the creation of the IHRF-OHSU Neuro-Radiology Imaging Library for chronic IH, which is a partnership between the Foundation and the radiology department at Oregon Health & Science University (OHSU) in Portland, Oregon. The Imaging Library will be run as a project...Read More »