Pregnancy and Diamox Use Study Update
Pregnancy and Diamox Use Study Update: Additional Participants Are Needed!
The IH Registry is looking for additional women with chronic IH who have been pregnant at or since the time of their IH diagnosis to participate in the pregnancy and Diamox use study. If you meet this criteria, please continue reading and answer at the end!
About the Study:
Diamox (acetazolamide) is officially designated as a Class-C drug, which means that its safety for use during pregnancy has not been established. Physicians are often reluctant to use Diamox before the 20th week because of this designation and a general lack of data on the subject. But there are few treatment alternatives since surgery with general anesthesia poses a high risk to the fetus and serial spinal taps only provide temporary relief.
IHRF and the IH Registry are seeking participants for a study to evaluate the safety and efficacy of Diamox use during pregnancy. We are seeking women with chronic IH (either idiopathic or secondary IH) who have been pregnant at or since the time of their IH diagnosis. We are interested in both those who have and those who have not taken Diamox during pregnancy.
If you meet this criteria, please take a moment to answer the eight short questions. Once your Information Request has been received, a study packet with complete instructions will be sent to you. Your participation could impact the way doctors treat IH during pregnancy. Thank you!