In the News (continued)
Emory University Study: IIH, African Americans and Vision Loss
Emory University Study Finds That African Americans with IIH Have a Higher Risk of Vision Loss April 15, 2008—African Americans are more likely to lose vision as a result of idiopathic intracranial hypertension, according to a study published in a recent issue of the medical journal, Neurology. “The racial difference does not appear to be based on differences in diagnosis, treatment or access...Read More »
Diamox and Pregnancy Study Receives Approval
Diamox and Pregnancy Study Receives OHSU Approval and Will Begin in March 2008 March 5, 2008— A research study, examining the use of Diamox by chronic IH patients during pregnancy, has received approval to begin from Oregon Health & Science University’s (OHSU) Institutional Review Board. The study is collaboration between the IH Registry and OHSU. Julie Falardeau, M.D., a neuro-ophthalmologist and an...Read More »
IHRF Establishes Neuro-Imaging Library at OHSU
IHRF Establishes Neuro-Imaging Library at Oregon Health & Science University (OHSU) The Intracranial Hypertension Research Foundation (IHRF) is excited to announce the creation of the IHRF-OHSU Neuro-Radiology Imaging Library for chronic IH, which is a partnership between the Foundation and the radiology department at Oregon Health & Science University (OHSU) in Portland, Oregon. The Imaging Library will be run as a project...Read More »
IHRF Partners with NASA to Test Non-Invasive Pressure Monitoring Technology
January 1, 2004—The Intracranial Hypertension Research Foundation (IHRF) has recently assisted NASA with the clinical testing of non-invasive pressure monitoring technology. Approximately 50% of all astronauts develop Space Adaptation Syndrome (SAS) or space sickness, which is thought to be a form of intracranial hypertension, caused by a retention of fluids within the brain. While SAS is self-limiting and usually only lasts...Read More »
Strep Infection Identified as Another Possible Cause of Secondary IH
January 1, 2006—In another study examining patients enrolled in the IH Registry, investigators at Ohio State University in Columbus discovered evidence that points to a possible link between Group A streptococcal infections and intracranial hypertension. The research is being led by Susan Benes, M.D. Ayam Skaf, a member of the Benes lab group, discussed his hypothesis that a significant number of children,...Read More »
IH Registry Study Finds Type of Initial Surgery to Treat IH Affects Number of Future Procedures
January 1, 2006—A recent study suggests a correlation between the choice of the primary surgical procedure and the need for subsequent surgeries in IH patients with vision loss due to intracranial pressure. The study was conducted by Susan C. Benes, M.D., from Ohio State University in Columbus OH and run in conjunction with the IH Registry. Data from a group of...Read More »
Ohio State Researchers Develop First In Vitro and Ex Vivo Models of Human Arachnoid Granulations
Team at Ohio State Achieves IH Research Milestone January 1, 2006—Researchers at Ohio State University in Columbus, Ohio recently announced that they’ve successfully grown cells from human arachnoid granulations in the brain and have created the first in vitro and ex vivo models of cerebrospinal fluid (CSF) outflow. These cells, known as pia-arachnoid cells or “cap cells,” are located at...Read More »
IHRF Funds IH Animal Model Project at University of Arkansas
January 1, 2005—IHRF has awarded its first research grant of $18,000 to Wayne Kuenzel, Ph.D. at the University of Arkansas in Fayetteville, Arkansas to confirm whether the chicken is an animal model for intracranial hypertension. The research team is being led by Dr. Kuenzel, who is a world authority on avian neurophysiology. Dr. Kuenzel’s project is expected to continue for...Read More »
Health Economics Study to Examine Financial Impact of Chronic IH
Health economics researchers from Washington State University in Pullman, Washington and Gonzaga University in Washington State are currently working with the IH Registry to establish the economic burden of chronic intracranial hypertension on both affected individuals and society, in order to raise awareness of IH among public policy makers and the general public. Data from this study is also expected to...Read More »
IHRF Establishes Donor Program with NDRI
February 20, 2007— The Intracranial Hypertension Research Foundation (IHRF) recently signed an agreement with the National Disease Research Interchange (NDRI), a NIH-funded national donor tissue procurement and distribution organization, to establish the first donor tissue program for chronic intracranial hypertension (IH). One of the main reasons for the slow progress of chronic intracranial hypertension research has been a lack of human...Read More »
NIH To Fund Four Projects Testing Non-Invasive Pressure Monitoring Technology
January 28, 2007—The National Institutes of Health (NIH) announced this past week that it is funding four separate projects, which each seek to develop technology for non-invasive intracranial pressure monitoring. The projects, which will be funded through the National Institute of Neurological Disorders and Stroke (NINDS), represent a major breakthrough in recognizing the importance of non-invasive pressure monitoring. Each project will concentrate...Read More »
IHRF, OHSU Establish First Neuro-Imaging Library
May 21,2007—The Intracranial Hypertension Research Foundation (IHRF) is excited to announce the creation of the IHRF-OHSU Neuro-Radiology Imaging Library for chronic IH, which is a partnership between the Foundation and the radiology department at Oregon Health & Science University (OHSU) in Portland, Oregon. The Imaging Library will be run as a project of the IH Registry. For the first time, researchers from...Read More »