In the News (continued)
The Columbian: Small Nonprofits Succeed
Letter to the Editor from Emanuel Tanne, M.D. The following letter to the editor originally appeared in the August 21, 2008 edition of the Columbian, Vancouver, Washington. Small Nonprofits Succeed Thank you for your excellent feature on the economic impact of nonprofit organizations in Clark County (July 20). Interestingly, the income of the county’s 10 largest nonprofit organizations makes up nearly three-quarters ($828...Read More »
Is My Doctor The Right One For Me?
5 Important Questions That Can Help You Decide “How a doctor thinks can first be discerned by how he speaks and how he listens,” writes Jerome Groopman M.D. in his latest book, “How Doctors Think,” which examines the importance of communication between doctors and patients, and its impact on diagnosis and treatment. Doctors depend on patients to tell them about their illnesses;...Read More »
IH Awareness Video
Spreading IH Awareness Watch as Ms. Arkansas USA Ambassador 2017 Saba Harris works to educate others about intracranial hypertension and her own experiences as an IH patient: From KATV, Little Rock, Arkansas http://katv.com/news/local/pageant-queen-working-to-educate-others-on-intracranial-hypertension
Emory University Study: IIH, African Americans and Vision Loss
Emory University Study Finds That African Americans with IIH Have a Higher Risk of Vision Loss April 15, 2008—African Americans are more likely to lose vision as a result of idiopathic intracranial hypertension, according to a study published in a recent issue of the medical journal, Neurology. “The racial difference does not appear to be based on differences in diagnosis, treatment or access...Read More »
Diamox and Pregnancy Study Receives Approval
Diamox and Pregnancy Study Receives OHSU Approval and Will Begin in March 2008 March 5, 2008— A research study, examining the use of Diamox by chronic IH patients during pregnancy, has received approval to begin from Oregon Health & Science University’s (OHSU) Institutional Review Board. The study is collaboration between the IH Registry and OHSU. Julie Falardeau, M.D., a neuro-ophthalmologist and an...Read More »
Understanding Papilledema
Is it always present in intracranial hypertension? Papilledema, or swelling of the optic nerves, is often considered a hallmark sign of intracranial hypertension. But what does your doctor see when he looks into your eyes? Read on to find out what papilledema is, why it develops, what a venous pulsation is and whether papilledema is necessary for an IH diagnosis. How does...Read More »
What Exactly Is An Empty Sella?
What you need to know if you have chronic IH Maybe this sounds familiar: you’ve just had an MRI and as your physician discusses the results, she mentions that you have an empty sella. If this has happened to you, you’re not alone. In fact, approximately 70% of individuals with chronic IH develop empty sellas. But what is an empty sella and...Read More »
This Week News: Ohio Woman Walks for IH Awareness
Young resident suffering from rare disease aims to raise funds, awareness September 27, 2007 By Robert Paschen (Editor’s Note: This story originally appeared in This Week News, Columbus, Ohio.) When area resident Lynnsey Schemrich found herself inside a medical helicopter in October 2001 en route to hospital after a head injury from a bike accident at Deer Creek Park, little did she know that this...Read More »
Austin American Statesman: Round Rock Teens with Rare Brain Illness Seek Hope
Intracranial hypertension causes severe headaches and can lead to blindness but has no cure. September 17, 2007 By Mary Ann Roser (Editor’s Note: This story originally appeared in the Austin American Statesman.) Intracranial hypertension causes severe headaches and can lead to blindness but has no cure. For Michelle Tate, the start of a new school year brings fresh hope. Maybe she won’t miss the big events....Read More »
Los Angeles Times: Cry For Help Strikes Chord of Friendship
August 22, 2007 By Amanda Covarrubias (Editor’s Note: This story originally appeared in the Los Angeles Times.) Musicians put together concerts to benefit research for incurable brain disorder. Dori Harrison-Clements hesitated to call anyone for help, but she was desperate. She had no job. One of her two sons suffered from an incurable medical disorder. And she could not think of what to do to...Read More »
IHRF Establishes Neuro-Imaging Library at OHSU
IHRF Establishes Neuro-Imaging Library at Oregon Health & Science University (OHSU) The Intracranial Hypertension Research Foundation (IHRF) is excited to announce the creation of the IHRF-OHSU Neuro-Radiology Imaging Library for chronic IH, which is a partnership between the Foundation and the radiology department at Oregon Health & Science University (OHSU) in Portland, Oregon. The Imaging Library will be run as a project...Read More »
San Luis Obispo Tribune: A Song For A Cure
October 6, 2006 by Sona Patel (Editor’s Note: This story originally appeared in the San Luis Obispo Tribune.) 16-year-old Robbie Clements of Los Osos will sing a Beatles tune today at a concert to raise money for research on intracranial hypertension - a painful neurological disorder he developed at age 12 Sixteen-year-old Robbie Clements of Los Osos used to go through one bottle of Advil...Read More »