Welcome
Intracranial hypertension (IH) is the general term for the neurological disorders in which cerebrospinal fluid (CSF) pressure within the skull is too high. (Old names for IH include Benign Intracranial Hypertension and Pseudotumor Cerebri).
The Intracranial Hypertension Research Foundation is the only non-profit organization in the world devoted to supporting the medical research of chronic intracranial hypertension. We also provide assistance, education, and encouragement for individuals with chronic IH, their families and medical professionals.
Our mission is to discover why intracranial hypertension happens, along with new, effective treatments. Our ultimate goal is to find a cure.
IHRF News and Events
Is Diamox Safe For Pregnant Women with IH? IH Registry Study on Diamox Use & Pregnancy Published in NANOS Journal
Join the Wall of Hope For Rare Disease Day, Feb.28
IHRF, IH Registry Selected For NIH Global Rare Diseases Registry (GRDR)
IHRF Scientific Advisor Awarded NSBRI/NASA Grant to Study Non-Invasive Pressure Monitoring
Presentations DVDs From 2011 IHRF Patient Conference Now Available in Our Store
CNN: Astronaut Vision Has Become Major Concern For Future Deep Space Missions
IHRF Part Of NASA Research Team On Microgravity-Induced IH
Patient Survey: IH Registry Seeks Your Help To Improve Registry Enrollment Process
Is Vision Loss in IIH Associated With Weight Gain Before Diagnosis?
Surprising Findings From IH Registry Study Published in the Journal of Women's Health
Previous research on women with IIH
has suggested that obesity or recent weight gain was associated with a greater risk of sustained vision loss or deterioration of the vision field. The following paper is the second research study published from an IH Registry project.

